Wednesday, October 26, 2011
Book Review: Your Cleft-Affected Child by Carrie Gruman-Trinker
Author: Carrie Gruman-Trinker
Usefulness Rating: 7/10
Referral: Found on Amazon
Source: Ordered used from Amazon
Books I've read this year: 136
While A Parent's Guide to Cleft Lip and Palate was a more useful book from a medical perspective, there were things I really liked about Carrie Gruman-Trinker's Your Cleft-Affected Child. Gruman-Trinker's son Aidan (the fifth child in her family) was born with pretty serious bilateral cleft lip and palate, and the book is part memoir, part information resource, and part cheerleader. One of the things I like best about the book is the short set of profiles of other people who were born with clefts (including Tom Brokaw, Jesse Jackson and Joaquin Phoenix). I also appreciated reading about her experiences with Aidan.
However, Aidan was still a preschooler at the time the book was published, and I'd love to hear how a cleft lip and palate affects a child as she grows. Part of the reason why I'm interested in that is because I'm making this research do double duty. In my fiction class we were assigned to write a short story that we had to do some research to write about effectively, and since we got our referral of Rose shortly after we got the assignment, it seemed natural to write about cleft lip and palate. I don't want to write the story from the point of view of a young child, and I'm finding it hard to get information on the lasting effects of this birth defect (is birth defect a p.c. term? Gruman-Trinker uses it in this book). It served my purposes as the mother of a child, (but only hand-in-hand with the more technical books about cleft lip/palate) but not my purposes as a writer.